Thank You For Participating!
In March, we sent out a survey (courtesy of the LDN Research Trust – www.ldners.com) to our patients on file as taking LDN. Of the 38 surveys sent out, 16 were completed and returned.
The following is a summary of the feedback:
Diagnosis, Duration of Treatment, and Side Effects
16 Patients Total
Diagnosis
Relapsing/Remitting: 9
Benign: 1
Primary Progressive: 4
Secondary progressive: 1
Fibromyalgia: 1
Of the 9 patients with Relapsing/Remitting MS, all reported experiencing between 1-2 relapses confirmed by a neurologist or GP before starting LDN.
One patient reported experiencing a relapse after taking LDN. This was not confirmed by a neurologist. All other patients have thus far experienced no relapses.
Duration of LDN Use
Six months or less: 3
Seven months – one year: 5
Over one year: 6
Two patients discontinued use of LDN because no symptom relief was gained.
Side-Effects
8 patients reported experiencing no side effects associated with LDN use.
6 patients reported experiencing the following temporary side-effects when starting LDN. These side-effects did not persist past the first month of use:
– difficulty sleeping
– strange/vivid dreams
– night sweats
– stiffness in legs at night and in morning
1 patient reported the persistent side-effect of weakness in legs. This patient continues to use LDN.
1 patient reported aching in lower legs, attributed to LDN. This patient discontinued use of LDN because no symptom improvement was gained.
Diet and Supplementation
14 patients take various dietary supplements
8 patients make dietary modifications, such as the Swank Diet and wheat and/or dairy free.
Specific Symptom Response
16 Patients Total
Patients were asked to respond to symptom relief of the following symptoms while on LDN. (Note, patients who never had this symptom are not included in the tally)
Specific Symptom Response
Bladder Urgency:
1 patient reported symptom gone
4 patients reported great improvement
4 patients reported slight improvement
1 patient reported great increase
Bladder Retention:
4 patients reported great improvement
4 patients reported slight improvement
1 patient reported no improvement
Sexual Dysfunction:
2 patients reported great improvement
1 patient reported slight improvement
2 patients reported no improvement
Bowel Control:
1 patient reported great improvement
1 patient reported slight improvement
1 patient reported no improvement
1 patient reported slight increase
Diarrhea:
3 patients reported great improvement
1 patient reported slight improvement
Constipation:
1 patient reported great improvement
3 patients reported slight improvement
2 patients reported no improvement
2 patients reported slight increase
Memory:
2 patients reported great improvement
6 patients reported slight improvement
1 patient reported no improvement
Concentration:
6 patients reported great improvement
2 patients reported slight improvement
1 patient reported no improvement
Depression:
4 patients reported great improvement
1 patient reported slight improvement 3 patients reported no improvement
Balance:
4 patients reported great improvement
4 patients reported slight improvement
1 patient reported slight increase
Dizziness/Vertigo:
1 patient reported symptom gone
3 patients reported great improvement
1 patient reported slight improvement
2 patients reported no improvement
Fatigue:
7 patients reported great improvement
4 patients reported slight improvement
2 patients reported no improvement
1 patients reported slight increase
Restless Legs:
1 patients reported great improvement
5 patients reported slight improvement
2 patients reported no improvement
Sleep Disturbance:
2 patients reported great improvement
1 patient reported slight improvement
3 patients reported no improvement
Hearing:
2 patients reported slight improvement
2 patients reported no improvement
1 patient reported slight increase
Speech:
2 patients reported great improvement
1 patient reported slight improvement
Swallowing:
1 patient reported symptom gone/great improvement
1 patient reported great improvement
Migraine-Type Headaches:
2 patients reported symptom gone
2 patients reported great improvement
1 patient reported no improvement
Optic Neuritis:
1 patient reported symptom gone
2 patients reported slight improvement
3 patients reported no improvement
Blurred Vision:
2 patients reported symptom gone
3 patients reported great improvement
3 patients reported slight improvement
1 patient reported no improvement
Double Vision:
2 patients reported symptom gone
1 patient reported slight improvement
1 patient reported no improvement
Mobility:
4 patients reported great improvement
3 patients reported slight improvement
1 patient reported no improvement
1 patient reported slight increase
Muscle Spasm:
1 patient reported symptom gone
4 patients reported great improvement
2 patients reported slight improvement
3 patients reported no improvement
1 patient reported slight increase
Muscle Strength:
1 patient reported great improvement
4 patients reported slight improvement
5 patients reported no improvement
1 patient reported slight increase
Muscle Pain:
1 patient reported great improvement
3 patient reported slight improvement
4 patients reported no improvement
1 patient reported slight increase
Tremor:
2 patients reported great improvement
1 patient reported slight to no improvement
1 patient reported no improvement
Tingling:
5 patients reported great improvement
1 patient reported slight improvement
5 patients reported no improvement 1 patient reported slight increase
Itching:
1 patient reported symptom gone
1 patient reported great improvement
1 patient reported slight improvement
1 patient reported no improvement
1 patient reported slight increase
Numbness:
3 patients reported great improvement
5 patients reported slight improvement
5 patients reported no improvement
1 patient reported slight increase
Neuralgia:
1 patient reported great improvement
2 patients reported slight improvement
1 patient reported no improvement
1 patient reported great increase
Overall, with virtually no side-effects and an opportunity to stabilize if not improve or eradicate symptoms associated with Multiple Sclerosis and other similar auto-immune disorders, LDN is a great boon to many people.
We will be adding to these results to strengthen statistical relevance every six months. Since last March, we have another 25 or so patients to survey.
Once again, thank you to all who participated!
Sincerely,
Rebecca Ayre
Contemporary Medicine
email: rayre@contemporarymedicine.net
phone: 630-321-9010
fax: 630-321-9018
web: https://contemporarymedicine.net